
MISSION: TO CONTINUOUSLY IMPROVE THE QUALITY, SAFETY, EFFECTIVENESS AND COSTS OF CARE OF CF PATIENTS AND THEIR FAMILIES
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About NNECFC
The Northern New England Cystic Fibrosis Consortium (NNECFC) is dedicated to continuously improving the quality, safety, effectiveness, and costs of care for cystic fibrosis patients and their families. The consortium focuses on developing and sharing information and research concerning the care and treatment of cystic fibrosis in Maine, New Hampshire, and Vermont. They support and sponsor annual in-person as well as virtual events to connect and share experiences among the local CF community. They provide educational resources for patients, their families and clinicians, such as videos of conference presentations, patient testimonials and links to novel treatments, to enhance understanding and improve the experience of patients. The consortium is active in case-based interdisciplinary discussions and plenary sessions, addressing key issues from living fully with CF to network-based research for genetic therapies in cystic fibrosis.
Patient and Family Resources
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Video Library
Self-care Manuals & Remedies

Clinical Studies and Trials

Dartmouth-Hitchcock
Title (Select to open) | Active |
|---|---|
PROSPECT (TDN) | Yes |
VX15-661-888 | Yes |
VX15-659-102 | Yes |
VVX15-661-113 | Yes |
EPIC-002 (TDN) | Yes |
Novartis Post-Marketing | No |
Fibrosing Colonopathy | No |
CHEC-SC | No |
VX14-661-110 | No |
VX15-809-110 | No |
VX17-659-105 | No |

MaineHealth
Title (Select to open) | Active |
|---|---|
Aridis | Yes |
STOP360 | Yes |
VX20-121-104 Skyline | Yes |
VX20-121-103 Skyline | No |










