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When
Aug 26, 2021, 12:00 PM EDT – Aug 27, 2021, 1:00 PM EDT
Where
Zoom
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Vermont
Forest Path
Rustic Beach Path
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About NNECFC

The Northern New England Cystic Fibrosis Consortium (NNECFC) is dedicated to continuously improving the quality, safety, effectiveness, and costs of care for cystic fibrosis patients and their families.  The consortium focuses on developing and sharing information and research concerning the care and treatment of cystic fibrosis in Maine, New Hampshire, and Vermont.  They support and sponsor annual in-person as well as virtual events to connect and share experiences among the local CF community.  They provide educational resources for patients, their families and clinicians, such as videos of conference presentations, patient testimonials and links to novel treatments, to enhance understanding and improve the experience of patients. The consortium is active in case-based interdisciplinary discussions and plenary sessions, addressing key issues from living fully with CF to network-based research for genetic therapies in cystic fibrosis.

Click icon to visit Cystic Fibrosis Foundation Northern New England Chapter

Patient and Family Resources

Provide a general description of the items below and introduce the services you offer. Click on the text box to edit the content.

Video Library

Year
Title
2026
All About Patient Research Participation
2026
Lung Transplant Program at Brigham & Women's Boston
2021
NNECFC Virtual Meeting August 2021 - Case Based Discussions
2021
Regional QI Project - "Improving Vitamin D Levels in Pediatric & Adult People with CF" Lauren Tate, RD
2020
CF Foundation | Path to a Cure
2019
CF Foundation COMPASS Program
2019
Gunnar Esiason
2019
New Developments in CF; Mary Ellen Corrigan, PNP
2018
Mixing Inhaled Amikacin (2018) ***NEW**
2016
Emily Schaller - ROCK CF Foundation - Keynote speaker
2016
F508del: What's after Orkambi?" by Dr. Ted Sears
2016
Genes to Dreams - Part I" by Dr. Jonathan Zuckerman
2016
Genes to Dreams - Part II" by Dr. Jonathan Zuckerman
2014
Aimee Driscoll: Her personal story (2011)
2014
Ashley Drew: Her personal story (2011)
2014
Caring for a Central Venous Line at Home (2014)
2014
Dr. Colby Wyatt: Evidence - Part II 2014
2014
Dr. Colby Wyatt: Evidence - Part III 2014
2014
Dr. Colby Wyatt: Evidence Behind Daily CF Care Part I 2014
2014
Dressing and Cap Changes for a Central Line at Home (2014)
2014
Flushing and Blood Withdrawal from a Central Line at Home (2014)
2014
G-Tube Experience
2014
G-Tube: THE FULL VERSION (2011)
2014
Introduction to Central Lines (2014)
2014
Ronnie Sharp - Intro
2014
Ronnie Sharp - Part I
2014
Ronnie Sharp - Part II
2014
Ronnie Sharp - Part III
2014
Ronnie Sharp - Part IV
2014
Using The Altera Nebulizer System with eFlow Technology
2013
Christine Singh: Lewis Walker Pediatric CF Program (2013)
2013
Dr Cairns: Improving Pulmonary Outcomes in CF in Maine (2013)
2013
Dr Sears: What's New in CF 2013
2012
Nutrition, nutraceuticals, and nonsense (2012)
2012
Patient and family care (2012)
2011
Hebe Quinton: Why do statistics matter? (2011)
2010
Airway Clearance (2010)
2008
Dr Zuckerman - Lung Transplant (2008)

Self-care Manuals & Remedies

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Clinical Studies and Trials

Dartmouth-Hitchcock

Title (Select to open)
Active
PROSPECT (TDN)
Yes
VX15-661-888
Yes
VX15-659-102
Yes
VVX15-661-113
Yes
EPIC-002 (TDN)
Yes
Novartis Post-Marketing
No
Fibrosing Colonopathy
No
CHEC-SC
No
VX14-661-110
No
VX15-809-110
No
VX17-659-105
No
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MaineHealth

Title (Select to open)
Active
Aridis
Yes
STOP360
Yes
VX20-121-104 Skyline
Yes
VX20-121-103 Skyline​
No
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University of Vermont

Title (Select to open)
Active
PROSPECT (TDN)
Yes

Care Team

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